Thursday, May 8, 2014

TODAY is World Ovarian Cancer Awareness Day!

Today is World Ovarian Cancer Day! Share these five key facts with your friends.

 1. All women are at risk of ovarian cancer
2. Awareness of the early warning signs of the disease could save lives
3. Diagnosis at an early stage vastly improves a woman’s chance of survival
4. Ovarian cancer is often diagnosed at a late stage....

5. Many women mistakenly believe the cervical smear test (Pap test) will detect ovarian cancer


 For more information visit
http://ovariancancerday.org/

World Ovarian Cancer Day
We all have women in our lives who we love and cherish: our mothers, our daughters, our sisters, our friends. Every woman in the world is at risk of developing ovarian cancer, the most serious gynecologic cancer.

Tuesday, May 6, 2014

P.INK Day 2014 Will be in MD!!!

I have been DYING to post this information, but I needed more things confirmed before I posted it.  P.INK has allowed each participant the option to host a P.INK Day in their location for 2014.  We will all host on 10.10.14. 

The MD/DC P.INK Day 2014 will be hosted at American Tattoo in Knoxville MD!  Shop owner Tiffiny Kaetzel is one of our artists for the day.  We are seeking at least 5 more artists who are willing to donate 1-6 hours of time on 10.10.14 for this campaign.  If you are an EXPERIENCED artist in mastectomy tattooing and interested, please send your name and how we can contact you to Tiffiny.

In addition we need at least 5 more survivors who are interested in a mastectomy tattoo.  You will need medical clearance to participate.  You can have anything tattoo'd; nipples, flowers, birds, lace, whatever suites your fancy.  If you are interested, please use the contact me box on this page to shoot me your name and how I can contact you.

I can't say enough amazing sentiments about P.INK and how it is changing lives.  So, I'll let the magic makers tell their own story.  If you haven't seen this video short yet, please check it out, learn more, donate or participate. 

Friday, March 7, 2014

P.INK Day 2013 Video Short

I never had a real sister.  But I have had amazing deep connections with other women from sorority sisters, best friends and other people fighting daily to end women's cancer.  These 9 other women are my sisters in the fight.  I love each and every one of them and admire their struggle, their strength and their success. 


Please watch and share this video about P.INK Day 2013; donate if you can.




Friday, February 28, 2014

Tuesday, January 7, 2014

Mastectomy Tattoos and P.INK

Firstly, I want to share the first installment of an article written by Skin Deep Magazine about P.INK and P.INK Day 2013.  You can see and read the first part of the article here.  My favorite part of this article is where they talk at the end about one of my P.INK sisters, Mari, and how Mari before tattoos is a different Mari than after her tattoos.  P.INK, maybe unknown to the project at the time, changed a lot of people in a lot of ways.  Mari and I would argue, I bet, that P.INK changed a lot of people for the better.

Well, friends, I believe I am a different Megan also.  Before my tattoos I didn't know if talking about a mastectomy and breasts was in some way indecent or inappropriate.  I always felt a yearning to share my story but at the same time I was cautious because I didn't want to make a situation awkward.  I didn't/don't want pity and I also didn't want to make people uncomfortable by talking about private body parts; regardless of the fact that the conversation would not be at all sexual.  I felt uncomfortable telling my colleagues of my leave of absence in order to have a mastectomy because I would not only be talking about breasts, but MY breasts.  I felt timid about sharing my story at the Relay for Life event where hundreds of my own students were in attendance.  Could I get fired for talking about my breasts? 

I went to New York for P.INK Day 2013 with the intention of not allowing pictures and never sharing my new ink with anyone but the three people in my household.  I left New York with my breasts splashed across the Internet from Huffington Post to Pinterest.  I also left and basically lifted up my shirt for anyone I felt would not call the cops on me.

I have an old friend that is a phenomenal photographer.  Christin Lewin who owns Captured by Christin, specializes in infant photography.  But I asked her if she would take some shots of my new ink so I could commemorate this year, this experience and this body.  My stomach will change and my foobs (fake boobs) will change, so I wanted pictures now so I could remember why I did this and the feeling of freedom and pride I had and have after getting P.INK'd.

Secondly, I want to share some of my photos compliments of Captured by Christin.  I love my tattoos.  I love my body and the way my scars are there and visible, as a gentle reminder, but so is an amazing amount of beauty and femininity.  Before I was tattooed I was "different".  I joked about my albino nips, but inside, it was a source of insecurity.  Now, I'm putting pictures of myself, half naked, on the Internet.  Right or wrong, the Megan before P.INK Day 2013 is very different than the Megan that come home.  And I wouldn't want it any other way.

Friday, December 20, 2013

Lots to Talk About...Lulumon, Turn Up the Heat, etc.)


Hello loyal followers. I can't call you readers because, well, I haven't written anything to be read ;-) Several times over the last month I have wanted to jump on here and spew my thoughts, but life, as usual, got in the way. So, here is a back log of my ponderings.....

1. Ovarian National Alliance Turn Up the Heat Event-

"The Ovarian Cancer National Alliance is proud to present the 9th Annual Turn Up the Heat! A Celebration of Women Chefs Gala on February 19, 2014, at our new venue -the Ronald Reagan Building and International Trade Center.

Join more than 400 guests for the food event of the season while raising important funds to fight ovarian cancer! You'll have the chance to mingle with nearly 50 women chefs, restaurant owners and mixologists Click here to purchase tickets or explore the links to discover more."

2. Lulumon and stupidity-
Firstly, I really am trying to be less critical and skeptical of people and at minimum, stop making faces and comments to indicate that I am currently judging and criticizing. However, when anyone makes a statement like the one quote below, I'm sorry, it is no longer within my will power to fight my belief that you are absolutely ridiculous.

Except taken from Chip Wilson's blog post from 2009:

"Breast cancer also came into prominence in the 1990's. I suggest this was due to the number of cigarette-smoking Power Women who were on the pill (initial concentrations of hormones in the pill were very high) and taking on the stress previously left to men in the working world."

Another statements that will be referenced below:

"Quite frankly, some women’s bodies just actually don’t work,” “It’s about the rubbing through the thighs,” and “how much pressure is there.”

WHAT? There are too many leaps in logic in these two sentences for me to adequately address all of them adequately. So, let me just say this; Chip Wilson, you make absurdly expensive women's clothing, yet you are not a woman. You make ludicrous statements about the shape of women's bodies yet you do not have a woman's body. You then make asinine statements about breast cancer, yet you are not medically trained, nor are you a Power Woman. So let me say this as I feel I am ALL of these; women, thigh rubbing and powerful; shut up. You demand too much money for a product you say does work for almost nearly every woman and then you spew inaccuracies and victim blaming statements about women with breast cancer. Shut up.



Wednesday, November 6, 2013

Monday, October 28, 2013

Every Voice Matters

From the University of South Carolina School of Medicine Genetic Counselibg Program:

Help future young, high-risk individuals like me and you by participating in a research study! We would love to hear your story! We are looking for women or men under the age of 25 who have undergone genetic testing and know that they carry a BRCA1 or BRCA2 gene mutation to take our online survey! For more details and information or to participate in our research please click here:http://www.surveymonkey.com/s/8HQNVDD

Sunday, October 27, 2013

Angelina Jolie Previvor Montage

I stole this montage from a blog called: http://www.helloeverydaylife.com

The video has a lot of great questions regarding BRCA and prophylactic surgery stemming from Angelina's announcement.  I wish the clip included the doctor referenced in the third segment. Again, I'll look for it and update once I'm off mobile.


 

Also stolen from Hello Everyday Life, this graphic on BRCA, who's at risk, what's the risk and general statistics. 





Wednesday, October 23, 2013

P.INK Day 2013




I just got back from New York City (first trip ever), and I am on a high of positive energy and have a renewed sense of "fight" for the cause. This trip was mind blowing in so many ways. I met amazing women from advocates, to survivors to artists. Everyone gave something to make the weekend as amazing as possible for the participants and the coordinators.

We arrived Sunday night to our hotel. It was crazy driving through the city, through tunnels and across bridges, dodging bikers and pedestrians. It was something I had never seen before. Once we arrived, we got ready for a pre-event reception in lower Manhattan. There I met the P.INK team as well as tattoo artists and fellow survivor participants. Right away the energy in the room was hopeful and excited. We were all so very grateful for each other and listened adoringly to each story as we had a chance to meet and connect. As we said our goodbyes I was overwhelmed with excitement that I had a hard time sleeping.

Monday morning, we all gathered outside of Saved Tattoo in Brooklyn. Saved Tattoo graciously allowed P.INK to use their space and invite guest artists to complete 10 mastectomy tattoos for the first P.INK Day. Stephanie Tomez is a part owner of Saved Tattoo and she, along with other artists of Saved Tattoo participated in marathon tattooing. Some women were there for more than 8 hours of tattooing. That is nothing short of miraculous and fierce for not only the woman being tattooed, but also the tattoo artist.

My artist, Joy Rumore, is from Twelve 28 Tattoo around the corner from Saved Tattoo. She single handedly owns Twelve 28 Tattoo and has a connection with the cause. She herself had a cancer scare herself at 19 and lost loved ones to the disease. We connected immediately on these points and our silly witty personalities. I was tattooed for 3-4 hours and we laughed the entire time. I am honored to say that Joy is a truly beautiful person inside and out and I look forward to a forever friendship and bond from this experience with her.

After we were all tattooed and refreshed, we met for a post reception at a local bar/restaurant. There we talked about the day and exchanged thank yous to the organizers. We got to further meet and talk to Mollie the inspiration behind the entire project (see Mollie's story here). There I was asked an interesting question. What makes a mastectomy tattoo different than any other tattoo? I'll get back to this answer later, because it is a provocative question.

The next day, Tuesday, I was asked to participate in an interview with HuffLive about my experiences with P.INK and P.INK Day 2013. Of course I said yes! While in the "Green Room" (which is not green at all), I rubbed elbows with a super cute TV star, Tyler Blackburn of Pretty Little Liars and Ravenswood. 

After taking pics and drinking yummy coffee drinks, I was on set talking about my mom, my story and P.INK Day 2013.  You can see the full conversation here .  Huffington Post also wrote up a short article about my personal story with BRCA and my mom, as well as clipped just my speaking parts. You can see both the article and the short clip here.

The interview was an amazing experience. I was apprehensive at first being a teacher. I wasn't sure if I would have negative backlash for talking about a sensitive issue so publically. But, after much antagonizing thought, I decided that I am not doing anything wrong, ugly or perverse, so I have nothing to hide or be ashamed of. I dare anyone to say otherwise. Go on, I dare you! (haha)


The experience I had with P.INK cannot be categorized with words. I didn't realize what I was being given and I cannot find the words to adequately express my gratitude, and pride for this organization. I hope to help in any way I can for the future of P.INK and for survivors and women everywhere.

Please consider donating to P.INK 2013 and to future events. 

Thursday, September 26, 2013

P.INK Day 2013

I have amazing news that both elates me and humbles me.  I haven't written in far too long.  I even had thoughts, once, about not writing again.  Life is chaotic at this point and I often find myself feeling like I am drowning in "stuff".  My hormones were off for quite awhile due to a pharmacy mix-up and I have been struggling heavily with insomnia.  The hormones are finally leveling out and I am starting to feel better and sleep better.  But after today and the connect I made because of this blog, and the opportunity I have, I am humbled that I was about to give up.  Thank you "J" for that renewed sense of needing to do something.

An organization called Personal Ink, P.INK, contacted me to an effort to find 10 women with mastectomy scars to participate in their P.INK Day 2013.  I am thrilled to be part of this campaign as I can't even express with words the discomfort of looking different.  This campaign is giving 10 women the chance to have their scars turned into art, their experience turned into beauty and their stories turned into tales of strength, survival and courage.

Here is more about the P.INK campaign, and Molly, the woman that started it all.  Support P.INK, Molly and me, as well as 9 other women, in this amazing event.  Give a woman a lifetime of confidence.


Wednesday, July 24, 2013

National Wear Teal Day 2013

 
 
 
Teal is the color of ovarian cancer awareness. On the first Friday in September, we ask you to wear teal to show your support for women whose lives have been touched by this deadly disease.

Taking part is easy! RSVP on the "Wear Teal Day 2013" Facebook page to pledge that you will wear teal for ovarian cancer. On September 6, don your best teal, take a photo, and post in on your favorite social media sites using the hashtag #WearTeal. Help us spread the word by sharing this event with your Facebook friends.

We'll compile your best teal photos and share them throughout the month of September, which is National Ovarian Cancer Awareness Month.

Learn more about ovarian cancer at
http://www.ovariancancer.org/

Thursday, July 4, 2013

New year = New Challenges

I have been thinking for a while about doing a triathlon.  If you know me it will not surprise you that I signed up for 2.  LOL.  Why do anything just once.  Dive right in and go for it.  I have my first sprint tri on Sept. 29th.  It is a women's triathlon for the local YMCA.  A sprint tri is a 300 meter swim (in a pool), 10 mile bike ride and 3.2 mile run.  I think I got this.  I am not going for "good" or "fast" just finish!

The second triathlon is just a week later and it is an Olympic Distance Triathlon.  This is a bit more, um, crazy.  It s 40 total miles; .9 mile swim (open water), 32 mile bike and 6.5 mile run.  This race supports the Ulman Cancer Fund for Young Adults.  Basically Ulman Fund is a special fund to help people who are in their teens, twenties and thirties to fight cancer. 

If you are able, I would love it if you could support me in this.  I love swimming, biking and running for something.  It keeps me honest and accountable to my own health.  Here is the link to my fundraising page: http://halffulltriathlon.com/donations/?kwoAdvocateId=72OSHP2  I'll also have the donation form on this page on the sidebar and in the advocacy section of this blog.  Thank you!

Thursday, June 13, 2013

Score for Humanity

The supreme court today announced that you cannot by law patent DNA!  Well color me happy!  We are well on our way to making the BRCA genetic mutation test available to everyone!

Score one for humanity, Myriad= 0

Read all about it here: Court says human genes cannot be patented

Monday, June 10, 2013

New Challenges

To this point, I have felt very pleased with my decision regarding my surgery and I have been extremely open about it.  However, I find myself in a new challenging position.  In this situation, I feel embarrassed, uncomfortable and modest. 

The locker room.  I am now coaching swimming at the local YMCA and with that employment, I get a family membership.  I decided Friday that I was going to take a mid-day class and shower there to be ready for a formal celebration afterwards.  Everything was all fine and dandy until I had to shower in a large room with a bunch of naked women.  As a former swimmer, this would not phase me in the least; until now.  Sans areolas (funny, spell check doesn't recognize this as a word), I clearly look different.  I get noticeable stares.  I find myself rushing and covering and cowering to hide my scars.  I find myself embarrassed.  Not ashamed, but definitely uncomfortable and not open to discussing my surgery with strangers while naked. 

For the first time in 2 year, the 2 years since my surgery, this situation has me baffled.  How do you deal with this?  The obvious answer is getting nipple tattoos.  But I don't want that.  I want a mastectomy tattoo, and I have one scheduled, but in the meantime.  How would you feel if you saw someone without nipples in a locker room?

Wednesday, June 5, 2013

Money Talks; Cancer Research Suffers

Susan G. Komen announced today that they are cutting the 3-Day Walk event in seven cities!  7 Cities!  That's nearly a million dollars worth of money to cancer research and countless amounts of awareness lost.

This article relates the decline in participation and lack of fundraising potentially to the controversy last year with SGK and Planned Parenthood: Komen breast cancer charity cancels walks in seven U.S. cities

I urge anyone reading this blog, or others, to put aside political opinions, religious "laws" and personal reactions to SGK and Planned Parenthood to see the "real" loser in this battle.  The real loser is cancer patients and survivors.  People are reluctant to donate to SGK and SGK events because SGK supports Planned Parenthood and on the other side are reluctant to support SGK because they broke partnership with Planned Parenthood.  It's a lose lose for SGK.  But again, who is the real loser?  All the women that SGK supports and touches with their power, reach and funding. 

As a former 3-Day walk participant, 3 times over, and raising nearly $10,000 single handedly, I can say that I have done my research.  SGK gives around 80% of funds raised to research and advocacy.  80%!  They aren't paying secretaries, or breaking even on event costs.  They are putting money where it needs to be. 

I urge you to find other ways to express your political/religious opinions that doesn't include punishing cancer patients and women.  I know that is a lot to ask.  I hate to say it, but not funding programs from SGK because of Planned Parenthood (whether for or against) is misguided.  It's not having the intended impact desired, and instead is harming women across the country and the world.  Think about it.  Cancer doesn't discriminate.  It strikes all races, religions, political party members and genders alike.  Fighting cancer with politics and religion is ineffective.  Cancer, I assure you, doesn't care. 

Tuesday, May 28, 2013

Memorial Day

My Yiayia (Greek for Gandmother) used to tell me that she visited my Pappoús (Greek for Grandfather) every Memorial Day.  He was a WWII vet who was given a letter of commendation for saving his captain's life.  He died shortly after I was born, so I don't know him, but everyone just loved him. They said he was funny and kind. 

For the last four years, my Yiayia and my mother are barried next to my Pappoús.  So visiting this Memorial Day was an emotional ball.  I hate driving there, but I love being there.  It's like writing an e-mail or text.  You can't see the other side of the conversation, but you know they are there; if that makes sense.  I just feel whole, like a family again.

My aunt plants flowers every Memorial Day around the family headstone.  This year my children and their cousins (my brother's children) were there to help.  I remember planting flowers every spring with my mother.  I remember my grandmother's affinity to the rose bushes we had on the side of our house.  She was come in bloody from the thorns, but she loved to prune and trim and clip bouquets. 

It was a nice few hours to spend with everyone talking and laughing and just being together again.



Friday, May 24, 2013

Relay for Life 2013- Luminarias

These brave women who lost their fights with cancer paved a path for me and others to become empowered to make better choices and gain knowledge of our own risks.  These involuntary martyrs saved so many lives.